2.4 The concept of HRQOL
It is defined as an individual's perception of their physical, psychosocial and role functioning with respect to their health (9). This is in general a method applied in clinical care, and as well in trials containing children and their families (9,20). It is a system arranged to clarify a national health standard, and was established year 1980 to grasp the features of complete quality of life that can be revealed to affect health; both physically and mentally (5,6). HRQOL typically reveals how an individual feels concerning features in their life, which are related to their health (8).
It is structured in two arrangements, an individual and a community level. The individual part includes physical and mental …show more content…
It contains a basic part, which as well can become integrated with a disease-specific core. The most recent model contains 23 items distributed in four scales: physical, emotional, social and school functioning.
The PedsQL generic core scale are composed of a parallel child self-report and parent proxy-report format, meaning that it is completed by children and their parents and consists of developmentally appropriate forms for varying age groups. It takes 15 minutes to fill in all the answers. Each item is scored on a 5-point scale (0 to 4), with a greater score indicating worse function. Based on the number of items scored, there will be a mean value. This score is concluded in a reverse fashion to a scale of 0 to 100, with a higher score indicating better function (10).
2.7 Low level of HRQOL observed in different …show more content…
198 patients that had been diagnosed with JIA within the last 12 months participated, everyone above an age of 8 years, and their parents. It presented that more than half of the children (58.4%) were having higher PedsQL scores, linked with oligoarthritis and a low disease activity. This was also combined with less emotional difficulties according to the PedsQL questionnaire. Only 9% of the children were classified with lower HRQOL scores, and in comparison with the group having higher scores (58.4%), these 9 % were actually diagnosed with polyarthritis, an extended version. It is once again observed in an American study (27) published year 2014 that low
HRQOL scores were highly associated with the number of tender joints, functional restrictions, level of pain and disease activity. Inactive disease and reduced pain predicted better HRQOL.
2.9 Uveitis – a complication of JIA affecting HRQOL
JIA is the most common systemic cause of pediatric inflammatory eye disease (35), therefor uveitis can be used as a suitable example as it is claimed to have a witnessed effect on the HRQOL
It is defined as an individual's perception of their physical, psychosocial and role functioning with respect to their health (9). This is in general a method applied in clinical care, and as well in trials containing children and their families (9,20). It is a system arranged to clarify a national health standard, and was established year 1980 to grasp the features of complete quality of life that can be revealed to affect health; both physically and mentally (5,6). HRQOL typically reveals how an individual feels concerning features in their life, which are related to their health (8).
It is structured in two arrangements, an individual and a community level. The individual part includes physical and mental …show more content…
It contains a basic part, which as well can become integrated with a disease-specific core. The most recent model contains 23 items distributed in four scales: physical, emotional, social and school functioning.
The PedsQL generic core scale are composed of a parallel child self-report and parent proxy-report format, meaning that it is completed by children and their parents and consists of developmentally appropriate forms for varying age groups. It takes 15 minutes to fill in all the answers. Each item is scored on a 5-point scale (0 to 4), with a greater score indicating worse function. Based on the number of items scored, there will be a mean value. This score is concluded in a reverse fashion to a scale of 0 to 100, with a higher score indicating better function (10).
2.7 Low level of HRQOL observed in different …show more content…
198 patients that had been diagnosed with JIA within the last 12 months participated, everyone above an age of 8 years, and their parents. It presented that more than half of the children (58.4%) were having higher PedsQL scores, linked with oligoarthritis and a low disease activity. This was also combined with less emotional difficulties according to the PedsQL questionnaire. Only 9% of the children were classified with lower HRQOL scores, and in comparison with the group having higher scores (58.4%), these 9 % were actually diagnosed with polyarthritis, an extended version. It is once again observed in an American study (27) published year 2014 that low
HRQOL scores were highly associated with the number of tender joints, functional restrictions, level of pain and disease activity. Inactive disease and reduced pain predicted better HRQOL.
2.9 Uveitis – a complication of JIA affecting HRQOL
JIA is the most common systemic cause of pediatric inflammatory eye disease (35), therefor uveitis can be used as a suitable example as it is claimed to have a witnessed effect on the HRQOL